Comment by kparker on Luck based medicine: my resentful story of becoming a medical miracle · 2022-10-31T23:28:18.563Z · LW · GW

how so? forum members submit info voluntarily and anonymously

natural experiments of your kind i.e. spontaneous resolution with some unexpected agent or lifestyle change - and other best practices based on n,000's of years living with a condition - there has to be value there for drug developers and clinicians. The work is authenticating claims and maybe matching people to scientists?

Comment by kparker on Luck based medicine: my resentful story of becoming a medical miracle · 2022-10-30T20:32:18.281Z · LW · GW

There really should be an aggregator for medical knowledge found on disease forums and posts of this kind (is there one?)